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Date
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january
Event Details
Register HERE Join the North Carolina Spasmodic Dysphonia Support Groups for a virtual meeting on Saturday, January 8, 2022 at 10:00 AM EST.
Event Details
Join the North Carolina Spasmodic Dysphonia Support Groups for a virtual meeting on Saturday, January 8, 2022 at 10:00 AM EST.
The group will discuss Questions 5 and 6 from Support Group Meeting Topic #2 regarding Karen Feeley’s book, Easier Done than Said: Living with a Broken Voice. We will also focus in on Image 3-2 on Page 52 of the book showing the Six Stages of Acceptance Model and a chart showing the Emotions and Tips for Survival for each stage.
You may print out a copy of the Six Stages of Acceptance Model by clicking HERE.
The Support Group Meeting Topic #2 and Questions can be found HERE.
If you are interested in obtaining a copy of Karen Feeley’s book, Easier Done than Said: Living with a Broken Voice you may click HERE to place your order.
WHEN | Saturday, January 8, 2021
TIME | 10:00 AM ET
Register HERE
We hope to “see” you there!
HOSTS
Spasmodic Dysphonia Support Group of Charlotte, NC
Mary Bifaro | pbifaro@carolina.rr.com
Greensboro, NC Spasmodic Dysphonia Support Group
Rev. Dr. Rebecca Cole-Turner | rebeccact@gmail.com
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Time
(Saturday) 10:00 am
Location
Online | Zoom
Organizer
Spasmodic Dysphonia Support Group of Charlotte, NC & Greensboro, NC SD Support Group*** Mary Bifaro | pbifaro@carolina.rr.com *** Dot Sowerby | sowerbydsowerby@aol.com *** Rebecca Cole-Turner | rebeccact@gmail.com ***
Virtual Event Details
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Event Details
Please join the Dystonia Support & Advocacy Group of San Diego County for our first meeting of the New Year on 1/8/22 from 1-3 PM Pacific time. WHEN |
Event Details
Please join the Dystonia Support & Advocacy Group of San Diego County for our first meeting of the New Year on 1/8/22 from 1-3 PM Pacific time.
WHEN | Saturday, January 8, 2022
TIME | 1:00 – 3:00 PM PST
RSVP | Martha Murphy 619-582-1961 mmurphy582@gmail.comleader@dystoniaofsandiego.com
After you RSVP, Martha will send Zoom log-in information
TOPIC: “Dystonia and Trauma: What Can These Cases Tell Us About Dystonia in General?”
GUEST PRESENTER: Neal Hermanowicz, MD, Movement Disorder Specialist, Christus-St. Vincent Regional Medical Center, Santa Fe, New Mexico.
I hope that you can join us for what promises to be a very interesting and enlightening presentation. Participation is always voluntary and you can choose not to show your image. You can join us via desktop, laptop, tablet, cell phone or landline phone or a combination of devices.
ABOUT OUR PRESENTER: Dr. Hermanowicz spent the majority of his career as the Director of the Movement Disorders Program at the University of California, Irvine. He completed an Internship in Internal Medicine and a Neurology residency at the University of Wisconsin in Madison, Wisconsin. He then completed a Fellowship in Movement Disorders at the University of Michigan. In January of 2020 he moved to Santa Fe, NM to establish neurology services at Christus-St. Vincent Regional Medical Center. The first clinical trial that he submitted to the human subjects committee was in 1989 when he was a fellow and it was the study of a potent nerve poison called botulinum toxin, then also called Oculinum, to treat cervical dystonia. His most recent publication was earlier this year which involved a case in which abdominal migraine responded to Botox injection into the scalp.
For questions and to RSVP please contact:
The Dystonia Support and Advocacy Group Leader of San Diego
Martha Murphy
Phone | (619) 582-1961
Email | mmurphy582@gmail.com or leader@dystoniaofsandiego.com
To learn more about the Dystonia Support Group of San Diego County please check out our website or our Facebook Page!
www.dystoniaofsandiego.com
www.facebook.com/dystoniaofsandiego
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Time
(Saturday) 1:00 pm - 3:00 pm PT
Location
Online | Zoom
Organizer
Martha Murphymmurphy582@gmail.com | leader@dystoniaofsandiego.com | 619-582-1961
Virtual Event Details
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*REGISTER HERE* Please join the Virtual Portland & SW Washington Dystonia & SD Support
Event Details
*REGISTER HERE*
Hi Everyone,
WHEN | Saturday, January 15, 2022
TIME | 10:00 AM – 12:00 PM PST
Meeting ID 810 6709 5369 | Passcode 841952
Dial by your location
+1 312 626 6799 US (Chicago)
+1 646 558 8656 US (New York)
+1 301 715 8592 US (Washington DC)
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)
+1 669 900 9128 US (San Jose)
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Time
(Saturday) 10:00 am PST
Location
Online | Zoom
Organizer
Dee Linde
Virtual Event Details
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Event Details
Register HERE Please mark your calendars for the next virtual support group meeting hosted by the NSDA Tampa Area Spasmodic Dysphonia Support Group on
Event Details
Please mark your calendars for the next virtual support group meeting hosted by the NSDA Tampa Area Spasmodic Dysphonia Support Group on Saturday, January 22, 2022 at 10:00 AM EST.
Our guest speaker will be Dr. Yael Bensoussan, MD MSc FRCSC (pictured right). Dr. Bensoussan is Assistant Professor of Laryngology at University of South Florida and was trained at USC in Los Angeles by Dr. Michael Johns who is well known by the SD community.
About Our Group | The Tampa Spasmodic Dysphonia Support Group provides a comfortable place to talk. You will hear how people cope, gain new information, and establish contacts. Discussions can be informative for the newly diagnosed as well as those who have been dealing with spasmodic dysphonia or other related voice conditions for many years.
WHEN | Saturday, Janurary 22 2022
TIME | 10:00 AM ET
Register HERE
Once you register, you will receive a confirmation by email containing a link to join the meeting at its scheduled time.
We hope to “see” you there!
HOST
Tampa Bay Spasmodic Dysphonia Support Group Leader
Ron Langdon | rjdec31@gmail.com
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Time
(Saturday) 10:00 am
Location
Online | Zoom
Organizer
Ron Langdon | rjdec31@gmail.com | 813-525-8215
Event Details
REGISTER HERE Valley of the Sun SD Support GroupWHEN | Monday, January 24, 2022TIME | 4:30 PM AZ/MST, 3:30 PM PST
Event Details
Valley of the Sun SD Support Group
WHEN | Monday, January 24, 2022
TIME | 4:30 PM AZ/MST, 3:30 PM PST
CLICK HERE TO REGISTER
TOPIC: Challenges faced with the voice over the holidays and/or in general situaltions and strategies that were helpful. Sara Charney, SLP, with Mayo Clinic and Sara Davis, SLP with Banner Health with lead the discussions. No matter your location, all are welcome to join! We hope to see you there!
About Our Group | The Valley of the Sun Spasmodic Dysphonia Support Group provides a comfortable place to talk. You will hear how people cope, gain new information, and establish contacts. Discussions can be informative for the newly diagnosed as well as those who have been dealing with spasmodic dysphonia or other related voice conditions for many years.
Please make sure you note the time for your time zone since this is a multi-state meeting with different time zones.
HOSTS
Valley of the Sun Support Group Leaders
Esther Zack | estherzack9@gmail.com
Vicki Orazem | vorazem@gmail.com
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Time
(Monday) 4:30 pm
Location
Online | Zoom
Organizer
Vicki Orazem or Esther Zackvorazem@gmail.com or estherzack9@gmail.com
Event Details
REGISTER HERE Please join the Greater Columbus Area SD Support Group for a virtual meeting on Wednesday, January 26, 2022 from 7:00 PM –
Event Details
REGISTER HERE
Please join the Greater Columbus Area SD Support Group for a virtual meeting on Wednesday, January 26, 2022 from 7:00 PM – 8:30 PM EST.
Do you have unanswered questions about your voice disorder? We invite you to attend our virtual meeting as we delve into the questions that are on our minds. Dr. James Lowery, ENT/Otolaryngologist, and Dawn B. Lowery, Ph.D., CCC-SLP, will be our guests. Together, they will offer insight and answers. They will start with the questions that we gather before the meeting and will answer some live questions if time allows. Questions should be sent to Carol Doles, carol.doles@gmail.com.
We hope you can join us as we all learn together.
About Our Speakers…
Dr. James Lowery currently practices at Ohio ENT and Allergy Physicians. He received his B.S. in chemistry from Miami University- Summa Cum Laude. He then went on to earn his medical degree from The Ohio State University College of Medicine. He completed his internship at Riverside Methodist Hospital and his residency at the University of Wisconsin. Dr. Lowery is a board-certified ENT (otolaryngologist) treating ear, nose, and throat conditions in infants, children, and adults. He has been practicing for over 30 years and highly values his relationships with his patients and their families.
Dr. Dawn Lowery currently practices at Ohio ENT and Allergy Physicians. She received her Bachelor’s Degree in Communicative Disorders; Master’s Degree in Speech Language Pathology; and PhD in Speech Pathology, all from University of Wisconsin – Madison. Dr. Lowery serves as the Clinical Director for Greater Columbus Spasmodic Dysphonia Support Group.
MEETING HOST
Greater Columbus Area Spasmodic Dysphonia Support Group Leader
Carol Doles | carol.doles@gmail.com
CLICK HERE TO REGISTER
WHEN | Wednesday, January 26, 2022
Time | 7:00 PM – 8:30 PM EST
Once you register, you will receive a confirmation by email containing a link to join the Zoom meeting at its scheduled time.
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Time
(Wednesday) 7:00 pm - 8:30 pm
Location
Online | Zoom
Organizer
Carol DolesGreater Columbus Spasmodic Dysphonia Support Group Leadercarol.doles@gmail.com
Event Details
*REGISTER HERE* Please join the Los Angeles Area Spasmodic Dysphonia Support Group virtual meeting being held on Thursday,
Event Details
*REGISTER HERE*
About Our Speaker: Dr. Berke is currently Professor and Chair Emeritus in the UCLA Department of Head and Neck Surgery and director of the UCLA Voice Center for Medicine and the Arts, which he founded, Dr. Berke is considered by his peers to be an international authority on laryngeal physiology. Born and raised in Southern California, he began developing his interest in the voice and ultimately his medical specialty, as a rock musician and songwriter. Dr. Berke came to UCLA to complete his surgical residency, after graduating from both undergraduate and medical school at the University of Southern California, and became an assistant professor, then advanced to become professor and chair of head and neck surgery. Dr. Berke has authored over 175 papers in print and 30 grants based on laryngeal physiology and voice disorders and mentored numerous research fellows. Dr. Berke was asked to be a member on the National Institute on Deafness and Other Communication Disorders Advisory Council for six years. He performed the first functioning larynx transplant in animals and developed the only surgical treatment for adductor spasmodic dysphonia. Dr. Berke has also pioneered many of the techniques now used by laryngologists to treat patients in an office setting. Considered by his peers to be an international authority on laryngeal physiology, one of Dr. Berke’s main clinical and research focus has always been laryngeal function and the professional voice. Dr. Berke serves as the Chair of the Scientific Advisory Board for the National Spasmodic Dysphonia Association.
Register HERE
You’ll receive a confirmation email containing a link to join the meeting at its scheduled time.
WHEN
Thursday, January 27, 2022
TIME
5:00 PM PT
We hope to “see” you there!
HOST
Los Angeles Area SD Support Group Leader
Toni Gold | toni.gold2@gmail.com
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Time
(Thursday) 5:00 pm PST
Location
Online | Zoom
Organizer
Toni Goldtoni.gold2@gmail.com
february
Event Details
Register HERE Join the North Carolina Spasmodic Dysphonia Support Groups for a virtual meeting on Saturday, February 12, 2022 at 10:00 AM EST. TOPIC: “Learning to
Event Details
Join the North Carolina Spasmodic Dysphonia Support Groups for a virtual meeting on Saturday, February 12, 2022 at 10:00 AM EST.
TOPIC: “Learning to Love Ourselves and Our Voices: Sharing Stories of Loving Self-Care.”
We’d like to encourage you to begin thinking of the personal practices you’ve developed to create a loving relationship with yourself and others, to calm your stress and anxiety, and encourage a loving environment in which to enjoy your life. Rebecca Cole-Turner, leader of the Greensboro SD Support Group, will begin the meeting by reading a couple of poems to help get us in the mood for this story-sharing time. During our discussion, Rebecca will invite attendees to share their reflections. Along with Mary Bifaro, they serve as co-leaders of our monthly NC Spasmodic Dysphonia Support Group meetings.
About Our Group: The North Carolina Spasmodic Dysphonia Support Groups provide a comfortable place to talk. You will hear how people cope, gain new information, and establish contacts. Discussions can be informative for the newly diagnosed as well as those who have been dealing with spasmodic dysphonia or other related voice conditions for many years.
WHEN | Saturday, February 12, 2022
TIME | 10:00 AM ET
We hope to “see” you there!
HOSTS
Spasmodic Dysphonia Support Group of Charlotte, NC
Mary Bifaro | pbifaro@carolina.rr.com
Greensboro, NC Spasmodic Dysphonia Support Group
Rebecca Cole-Turner | rebeccact@gmail.com
more
Time
(Saturday) 10:00 am
Location
Online | Zoom
Organizer
Spasmodic Dysphonia Support Group of Charlotte, NC & Greensboro, NC SD Support Group*** Mary Bifaro | pbifaro@carolina.rr.com *** Dot Sowerby | sowerbydsowerby@aol.com *** Rebecca Cole-Turner | rebeccact@gmail.com ***
Event Details
REGISTER HERE Chicagoland Area SD Support GroupWHEN | Thursday, February 17, 2022TIME | 7:00 PM CSTOnce you register, you will receive
Event Details
Chicagoland Area SD Support Group
WHEN | Thursday, February 17, 2022
TIME | 7:00 PM CST
Once you register, you will receive a confirmation by email containing a link to join the meeting at its scheduled time.
The Chicago Area NSDA Support Group is delighted to invite you to our first of four quarterly gatherings in 2022 on Thursday, February 17 at 7:00 PM CST.
Our guest speaker, Dr. Brandon Baird, will speak about his work at the University of Chicago Hospital in the field of Spasmodic Dysphonia.
There will be time for questions, so please bring yours!
About Our Speaker: Brandon Jackson Baird, MD, is an Assistant Professor of Surgery and Director of the UChicago Medicine Voice Center. He is a laryngeal surgeon specializing in a wide range of laryngeal diseases with an emphasis on medical and surgical management of voice and swallowing disorders.
Dr. Baird’s expertise includes treating phonotraumatic vocal cord lesions, vocal fold paralysis, laryngeal stenosis, laryngeal cancer, spasmodic dysphonia, recurrent respiratory papillomatosis and providing care of performing and professional voice artists. As a trained singer himself, Dr. Baird understands the importance of expert laryngeal care, and he has the skill and experience to treat professional voice artists for voice conditions. As a dedicated researcher, Dr. Baird is identifying and developing novel biotechnology within the field of laryngeal surgery.
HOST
Chicagoland Area Spasmodic Dysphonia Support Group Leader
Kate Blaker | kmcblaker@icloud.com
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Time
(Thursday) 7:00 pm
Location
Online | Zoom
Organizer
Vicki Orazem or Esther Zackvorazem@gmail.com or estherzack9@gmail.com