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Connect with those who understand

No one understands what you are going through better than someone who also lives with a voice disorder. Most people say, “I never heard someone who sounded like me until I went to a support group meeting”. A support group can provide a lifeline, information on doctors, experiences with treatments, tips to help you thrive and lifelong friendships.

  • Knowing you’re not alone is the best feeling.
  • Having someone to talk to about what’s happening is nurturing.
  • Making new friends who understand what you’re going through is critical.

That’s why we believe so strongly in support groups. Whether you have SD or some other voice disorder, you will find strength in support. These are people living with a voice disorder who want to help. They can meet for coffee, talk on the phone or communicate by email.

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ONLINE SUPPORT

NSDA Bulletin Board

The NSDA hosts a private Bulletin Board that encourages people with spasmodic dysphonia and related voice disorders to ask questions and share their experiences and frustrations. There is a rich archive that can be searched also. It is moderated by David Barton and Pat Hill.

Facebook Groups

The are numerous private groups related to spasmodic dysphonia on Facebook. Please note, the NSDA does not moderate these groups but include them as a resources. A few include ones on Spasmodic Dysphonia, Selective Laryngeal Denervation Reinnervation Surgery (SLAD-R), Type II Thyroplasty, Young SD-ers, and Abductor Spasmodic Dysphonia.