Event has already taken place!
Virtual Support Meeting | Hosted by the NSDA Portland Spasmodic Dysphonia Area Support Group
REGISTER HERE We hope that you are all well and enjoying the first sightings of spring! We would like to announce that the Portland Area
We hope that you are all well and enjoying the first sightings of spring!
We would like to announce that the Portland Area Support Group will hold a Zoom meeting for people with spasmodic dysphonia and related voice conditions on Saturday, April 17, 2021 from 10:00 am – 11:30 am PT.
This meeting will be hosted by Janet Gensert of Portland, Oregon, and Dorothy Tannahill-Moran from Kansas. Dorothy has graciously offered to temporarily co-lead our group until someone from this area is able to volunteer to help out in a co-leadership position. We are pleased that Kimberly Kuman, Executive Director of the National Spasmodic Dysphonia Association, will also join us!
The discussion for this meeting will focus on medical insurance coverage issues for treatment of voice disorders. We invite you to share any experiences that you have had, positive and/or negative, with various insurance companies. We would like to collect your stories to gain some insight into the problems people encounter and potentially answer some of your questions regarding the rejection of insurance coverage.
We would also like to have a discussion on how people have been coping during the pandemic. What have you found to be helpful? What have the challenges been for you?
We hope to see you at the meeting!
Take good care,
Janet and Dorothy
JOINING IS EASY! Register HERE
You’ll receive a confirmation email containing a link to join the meeting at its scheduled time.
Saturday, April 17, 2021
10:00 AM PT
Sign-in a few minutes prior to the meeting to make sure video and audio is working properly.
This virtual session will be hosted utilizing Zoom, an online meeting platform. You can participate via video or audio. This meeting is password protected to ensure your privacy.
We hope to “see” you there!
Portland Spasmodic Dysphonia Support Group Leader
Janet Gensert | firstname.lastname@example.org
(Saturday) 10:00 am
Online | Zoom
Virtual Event Details
Daniel Lee Bray
ALIVE FOREVER MORE
August 24, 1984 – December 20, 2020 (36 years old)
Daniel was a son, brother, animal lover, artist, animator, poet, rapper, musician and extraordinary soul who was filled with extraordinary faith while conquering enormous challenges after being diagnosed with Spasmodic Dysphonia at 19 years old. His story is a story of triumph, victory, courage and understanding. Daniel left many life lessons and through his experience on earth he will continue to touch lives inspiring us all to be more aware and to build more awareness of what brought him home. Daniel is a warrior and his inspiration that has been collected by his family will be used to bring hope and to change the world!
“We don’t yet see things clearly. We are squinting in a fog, peering through a mist. But it won’t be long before the weather clears and the sun shines bright! We’ll see it all then, see it all as clearly as God sees us, knowing Him directly just as He knows us!”
— 1 Corinthians 13:12
We Love You Always Dan!
ABOUT THE NSDA
- The National Spasmodic Dysphonia Association is dedicated to improving the lives of people with spasmodic dysphonia and related voice conditions through research, education, awareness and support.
- Address:300 Park Boulevard | Suite 175 | Itasca, IL 760143
- Email:NSDA@dysphonia.orgOpens in your application