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Virtual Support Meeting | Hosted by the NSDA New York City SD Support Group
Virtual Support Meeting | Hosted by the NSDA New York City SD Support Group
Event Details
REGISTER HERE Join us on April 6, 2021, at 7:15 pm for the next virtual meeting of the New
Event Details
Join us on April 6, 2021, at 7:15 pm for the next virtual meeting of the New York City Spasmodic Dysphonia Support Group. Our guest speaker will be Christie DeLuca, MS, CCC-SLP and her topic will be Communicative Freedom While Living with a Voice Disorder. She will lead a discussion on how those with a long-term voice disorder experience each of these effects uniquely, what you can do to minimize these, and what is important for others to know when learning about your voice disorder.
Christie has used this term to describe the limitations in how a person with spasmodic dysphonia or a similar voice disorder is able to freely use their voice to communicate in the desired way. Communicative freedom can be viewed as the ability to say what you want, when you want, how you want to. The blocks to communicative freedom for those with a long-term voice disorder can be physiological limitations, where you feel that the voice breaks, strain, or lack of volume inhibit your ability to have others hear or understand what you say. These communicative limitations can also result from negative emotions surrounding speaking, like embarrassment of the voice sound, fear of others’ perceptions, or increased self-consciousness when speaking.
Lack of communicative freedom can look like changing words to avoid voice breaks or strain, focusing more on the mechanics of speech than the actual message, choosing not to speak up due to effort or the assumption that others will not hear you, choosing to avoid speaking because of anticipated negative responses from others, or saying words that come out with a different tone than you intended (leading others to ask if you’re sick, nervous, or annoyed when you are not).
These are all “under the surface” symptoms, meaning others may not fully understand these experienced effects at first glance.
About Christie DeLuca, MS, CCC-SLP Christie DeLuca is a Speech Language Pathologist and Clinical Voice Specialist. She received her Master’s degree at New York University and completed her Clinical Fellowship at the Mount Sinai Grabscheid Voice and Swallowing Center in NYC. Christie currently works as a Voice Specialist at Cedars-Sinai Medical Center and additionally treats individuals with spasmodic dysphonia and other voice disorders through teletherapy in her private practice, Speaking Boldly. Christie has presented her research at several national voice and speech conferences, including the National Spasmodic Dysphonia Association Symposiums, and has shared clinical knowledge at NSDA patient support groups. She has promoted education on voice disorders through informational webinars, handouts, and blog posts and she helps to educate future speech pathologists as an adjunct professor of Voice Disorders at NYU. Christie continues to conduct research on patient perceptions of the impact of spasmodic dysphonia. Christie has spasmodic dysphonia herself, which gives her a unique insight into living with a voice disorder.
JOINING IS EASY! Register HERE
You’ll receive a confirmation email containing a link to join the meeting at its scheduled time.
WHEN
Tuesday, April 6, 2021
TIME
7:15 PM ET
Sign-in a few minutes prior to the meeting to make sure video and audio is working properly.
This virtual session will be hosted utilizing Zoom, an online meeting platform. You can participate via video or audio. This meeting is password protected to ensure your privacy.
We hope to “see” you there!
HOSTS
Adrienne Simons | NYC SD Support Group Leader | ahsimons@verizon.net
Christie DeLuca, MS, CCC-SLP | cjd414@nyu.edu
Time
April 6, 2021 7:15 pm ET(GMT-04:00)
Location
Online | Zoom
Virtual Event Details
RUN
IN MEMORY
Daniel Lee Bray
ALIVE FOREVER MOREAugust 24, 1984 – December 20, 2020 (36 years old)
Daniel was a son, brother, animal lover, artist, animator, poet, rapper, musician and extraordinary soul who was filled with extraordinary faith while conquering enormous challenges after being diagnosed with Spasmodic Dysphonia at 19 years old. His story is a story of triumph, victory, courage and understanding. Daniel left many life lessons and through his experience on earth he will continue to touch lives inspiring us all to be more aware and to build more awareness of what brought him home. Daniel is a warrior and his inspiration that has been collected by his family will be used to bring hope and to change the world!
“We don’t yet see things clearly. We are squinting in a fog, peering through a mist. But it won’t be long before the weather clears and the sun shines bright! We’ll see it all then, see it all as clearly as God sees us, knowing Him directly just as He knows us!”
— 1 Corinthians 13:12We Love You Always Dan!
ABOUT DYSPHONIA INTERNATIONAL
- Dysphonia International is dedicated to improving the lives of people with spasmodic dysphonia and related voice conditions through research, education, awareness and support.
- Address:300 Park Boulevard | Suite 175 | Itasca, IL 760143
- Phone:630-250-4504
- Email:voice@dysphonia.orgOpens in your application