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Posted by: William Pankey ® 10/03/2002, 17:10:28 Author Profile Mail author |
I just wanted to say hi and introduce myself to the group. I have SD and am receiving Botox injections. The injections leave me bearly able to talk (just in a whisper). I'm a college librarian and find my condition and its treatment very, very frustrating. To the point really that I've become rather depressed and anxious. I was hoping to find some support and encouragement from other who know what I'm going through. I never been a part of a bullentin board before so I don't really know how the whole process works. Bill |
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Posted by: David Barton (NZ) ® 10/03/2002, 17:59:41 Author Profile Mail author |
Hello William - welcome to the NSDA bulletin board and thanks for dropping in. Collectively we have experienced pretty much everything SD can throw at a person so I hope we can help you with advice and support. We certainly understand what you have been going through. Do you have ADductor SD (the more common type)? This is the one when, untreated, the vocal cords close together too forcefully and inappropriately, breaking off words on vowel sounds and making the voice sound strained and effortful. With AD/SD it's very common for the Botox shots to leave the patients with a low volume voice that is hard to project because of the wastage of breath (the Botox leaves the vocal cords unable to close enough). You should find that the volume will return after a few weeks. Then the SD spasms will return too. At the risk of being repetitive to the regulars on here, I personally found that in my case the breathiness was best dealt with by receiving the Botox in one vocal cord only - this is termed a 'unilateral' injection. In my case I get 10 units in the same (right) cord each time, and the doctor puts half the dose in one site, and the other half close by, to ensure that the Botox reaches the right spot. It's interesting you describe your voice as 'whispery'. When I had untreated (and it was severe) SD, I sometimes used to compensate by deliberately whispering. You have made a good start in understanding how the bulletin board works by registering successfully - and all you need to do to keep participating is to read the posts and keep posting! If you are able to meet with other SD patients you'll really benefit from that - the NSDA website has a list of support contacts at www.dysphonia.org - and if you ever get the opportunity to travel to an NSDA symposium you'll find those informative, stimulating and a great way of making new SD friends. The next one is in Washington, DC on Saturday March 8, 2003. Best wishes David Barton (AD/SD, Auckland, NZ) |
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Posted by: William Pankey ® 10/03/2002, 18:52:39 Author Profile Mail author |
Hi David, I do get confused but I believe I have AD/SD. My doctor has explained the difference to me repeatedly but I still seem to forget. The breaking off of words and a strained and effortful voice sounds like what I've got. I've received shots for both types and small dosages and large dosages (without much benefit) but never a 'unilateral' injection.
Bill Pankey |
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