Help for My Mom
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Posted by: T Massey ®

01/08/2003, 10:11:32
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My Mom has suffered with blepharospasm and Spasmodic Dysphonia and the Bot. Toxin that only helped mildly at first dosen't work anymore and she is living like a shut in and in what I believe is a spiralling depression.I am not sure of diagnosis even .is it possible that she may be dopa responsive??? and do we have any Canadian Dr.s that are fluent in Dystonia Rx.?? Help if you can.

Thx






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Re: Help for My Mom
Re: Help for My Mom -- T Massey Top of Thread Archive
Posted by: Lloyd Pearson(BC) ®

01/08/2003, 11:19:51
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Hi there,

I'm very sorry to hear about your mom and her dystonia related problems. I see that you live in the Edmonton, Alberta area. From checking the NSDA website (www.dysphonia.org), there appears to be a movement disorder specialist in Edmonton. I am not familiar with this particular specialist and the NSDA cannot endorse any particular physician referral, but it may be worth your mom's time to get a diagnosis from him. The details are below:

W.R. Wayne Martin, M.D.

U of Alberta/glenrose Rehab. Hospital

Movement Disorder Clinic, Rm 19

10230 111 Avenue

Edmonton, Canada T5G 0B7

Tel: 780-474-8805

Fax: 780-474-8804

Specialty: Neurologist

Forms of Dystonia Treated: Blepharospasm, Cervical Dystonia (Spasmodic Torticollis), Oromandibular, Spasmodic Dysphonia, Writers Cramp, Early-Onset Generalized, Dopa-Responsive, Paroxysmal Dystonia, Myoclonic Dystonia

Administers Botulinum Toxin for: Blepharospasm, Cervical Dystonia (Spasmodic Torticollis), Oromandibular

Additional Procedures: Deep Brain Stimulation, Genetic Testing, Pallidotomy, Physical/Occupational Therapy, Speech Therapy, Thalamotomy

Treats Children

You might also want to post your question on the blepharospasm BB :

http://www.blepharospasm.org/forums/beb/ or the dystonia BB :

http://www.dystonia-bb.org/forums/asd/

These 2 boards specialize more in blepharospasm and dopa responsive dystonia issues, whereas this board is specifically targeted at SD related issues.

Hope this helps,

Lloyd Pearson(BC)Canada AD/SD







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