Dysphagia and SD | ![]() | ||
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Posted by: Tammy Caudell ® 11/11/2002, 21:36:08 Author Profile Mail author |
Hi Everyone, Have any of you experienced any dysphagia (trouble swallowing) as a result of you SD? My patient has complained of some dysphagia symptoms and I have read a little regarding dysphagia being related to SD in my textbooks, but can't seem to find much information on the two subjects together. My patient has suffered a stroke as well, so this may also have effected his swallowing abilities. Just thought I would see if any of you have experienced this as a result of your SD and may be able to provide me with some information. Thanks again! Tammy |
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Re: Dysphagia and SD | ![]() | ||
Re: Dysphagia and SD -- Tammy Caudell | Top of Thread | Archive |
Posted by: steven c simpson ® 11/11/2002, 22:19:10 Author Profile Mail author |
I have had a swallowing problem but I do not know if it was related to SD. 3-4 times a year food will get stuck in my throat. I usually have to get up and walk around and/or sip a little water. It's like I'm trying to swallow a golf ball. Sometimes I will regirgitate. Does this discibe the condition? |
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Re: Dysphagia and SD -- Tammy Caudell | Top of Thread | Archive |
Posted by: Kim ® 11/12/2002, 01:37:48 Author Profile Mail author |
I started having this problem last year out of the blue, as well... (interestingly just AFTER a major period of difficulty with SD had ceased!) It was definitely a weird neurological glitch which screwed up my coordination more than it already was. Specifically I was told it sounded like a delayed swallowing reflex. Before I found this part out (and after the "it's some weird neuro glitch" part), I asked others on the board if they experienced choking as a result of spasms related to SD, and got about 1/2 dozen responses or so, so I'm assuming that the choking and the SD are most likely related. (at least to me it makes more sense that two neuro glitches affecting the same area are going to be related than unrelated) For me, the dysphagia issues revolve around choking unpredictably, usually in the middle of swallowing food or drink, or just after, but sometimes I also choke for no particular reason. I was told it was probably because with a delayed swallwoing reflex, there is a de-regulation in terms of the fluid level in my throat... I choke either when there is too much saliva, or not enough.... Of course, I'm simplifying this somewhat, and leaving out the part when the speech path. I used to see know is too chicken to definitively recognize the SD as SD, because of it's uncommonality, even though she has the evidence right in front of her face, (though I have another medical professional who is utterly convinced, though whose field isn't related to dystonia, but is well aware of neurological stuff) and who recognizes the dysphagia as neurologically based -I suppose because she had the example of it resolving itself during a period where I was really stressed out. I'm also leaving out all the other weird neurological wiring of my brain.... my motor planning took a nose dive a few years ago, presumably as a result of overtaxing a precariously balanced nervous system ... sensory integration dysfunction, autism, apraxic elements..... etc.
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Re: Dysphagia and SD -- Tammy Caudell | Top of Thread | Archive |
Posted by: gavin hadley ® 11/12/2002, 07:06:16 Author Profile Mail author |
Tammy... I had trouble swallowing for several years prior to the onset of SD symptoms. I go in every 2-3 years for the esophagul dilation (not sure that's what it's called but it sounded pretty clinical). I tend to have trouble swallowing breads, especially yeast rolls....pity. I have asked my ENT about a connection between that and SD; he pretty much shrugged. gavin hadley SD/MTD |
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Re: Re: Dysphagia and SD -- gavin hadley | Top of Thread | Archive |
Posted by: Kim ® 11/12/2002, 12:18:53 Author Profile Mail author |
When I asked that same question, I was told did occur with some people, but it was extremely rare, and wasn't likely related in my case. ...of course, this was from the same person who also told me both that I did have some form of SD but she wasn't sure it it was neurologically based or not. (??!!! gee, if it's dystonia, then by definition it's neurological!)Basically,she was afraid being definite because she's afraid of being wrong, so... I don't put too much stock in what she says. |
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Posted by: Micki ® 11/12/2002, 11:33:56 Author Profile Mail author |
I have the exact same problem as Steven Simpson, except mine is more frequent. It started quite a while before the onset of voice problems. I believe mine is worse when I have postnasal drip. Some foods do it routinly and predictably - processed potatoes with sulfite preservatives, and MSG. I believe it is also more likely to happen when I eat hot spicy foods, then drink ice water. |
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Calcium and laryngospasms | ![]() | ||
Re: Re: Dysphagia and SD -- Micki | Top of Thread | Archive |
Posted by: Micki ® 11/12/2002, 12:57:38 Author Profile Mail author |
While researching the role of electrolytes in spasms, I ran across this reference. It says that faulty calcium metabolism, or intestinal malabsorption of calcium, can cause laryngospasms. My chiropractor/kinesiologist does say I have faulty calcium metabolism. Here's the reference: http://www.merck.com/pubs/mmanual/section2/chapter12/12d.htm |
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Posted by: Steven C Simpson ® 11/12/2002, 14:28:11 Author Profile Mail author |
I seems to happen when I eat too fast or eat greasy food. The first time it happened I was alone in a cavernous international airport concourse in the middle of the night!! I was eating duck and I thought I was going to choke and die 15,000 mile from home!! |
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Re: Re: Dysphagia and SD -- Micki | Top of Thread | Archive |
Posted by: Larry Blair ® 11/12/2002, 15:24:13 Author Profile Mail author |
You know what Micki, I think that is when I had the most problems with my swallowing, now that I look back. I used to go to lunch with a friend of mine to a chinese restaurant that we had been going to for years. It seems like I always had swallowing problems when eating there. I beleive it was the MSG they put in the food. I also have problems with my sinuses when I drink beer or wine. The Hops and Barley in the beer and the sulfate in the wine? I hate to give up things I enjoy though. So I suffer with it. Larry
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Re: Re: Dysphagia and SD -- Larry Blair | Top of Thread | Archive |
Posted by: Tammy Caudell ® 11/12/2002, 18:39:16 Author Profile Mail author |
Larry, It may actually be the alcohol itself in those favorite beverages of yours that could be causing you problems. Alcohol tends to dry out your vocal cords and will also do the same thing to your sinuses. I know you are just so glad to hear that information about your most enjoyed beverages! Tammy |
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Posted by: Larry Blair ® 11/13/2002, 20:20:39 Author Profile Mail author |
Tammy, I realize that alcohol and coffee are no no's. That was one of the first things they told us in Speech Therapy. Try to stay away from them. I only have an occasional beer or glass of wine anyway, so I don't see where that's such a big deal. I used to drink maybe one cup of coffee a day. I could take it or leave it. If I had more than one I would get all hyper. Aren't these called (Diarectics), things that tend to dry you out? I know that dairy products are probably not real good for me either, but I love cold stone ice cream, and always enjoy a cold glass of milk with a meal. Hard to break old habits, I guess?. Larry |
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Posted by: Tammy Caudell ® 11/12/2002, 18:33:57 Author Profile Mail author |
It looks like dysphagia may be more common in association with SD than originally thought based on all the responses from all of you. I have asked my patient to write down specific foods or drinks that are giving him difficulty so I could basically analyze if it may be foods of a particular texture, temperature related (which many of you mentioned with drinking ice water), thin liquids, sticky foods, etc. Several of you mentioned spicy foods which may also be related to GERD as well as dysphagia. One thing I had not thought about was MSG. I found that very interesting. My patient says he just gets choked at times. He has only mentioned cereal as of right now that is causing him difficulty which is common with a dysphagia patient because of the mixture of consistencies the dry hard cereal with a thin liquid milk. |
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Posted by: Kim ® 11/12/2002, 23:15:02 Author Profile Mail author |
This was one of the first things I was asked too when it initially started happening (what kinds of food, and whether it was food or drink or what). It was after I told my specialist that it didn't matter WHAT it was, that both food, and drink, and sometimes nothing at all will trigger it that she responded with "Oh,it's probably just some sort of neurological glitch" -which I'd already figured out, of course. ... The reason she phrased it that way is because my brain was in the process of throwing all sorts of other glitches and other major things at me, mostly in the way of motor planning and organizational (sequencing) problems, (which, actually included trouble coordinating chewing, breathing, and swallowing, but when that happened, I had warning much earlier in the process that I was going to have trouble, so I knew that wasn't it when I started choking unexpectedly on things) I have since found though that dry, crumbly foods tend to be the worst thing when I'm having particular difficulty (it seems to wax and wane, much as my problems with SD do, only it never wanes completely anymore, as I discovered repeatedly (and still do) if I forgot, and tried to swallow WITHOUT thinking about it... that was a sure bet for choking)... I think every major choking fit I've had had been a result of either liquid, or tiny crumbly things like chocolate, or cookie dough, or cheezies, or things like that. ('course, I've also choked on rice, and larger things, but....) popcorn too can be bad 'cause of those kernal husks... I have discovered one place in the back of my throat that is consistently trouble... if food falls in there I WILL choke guaranteed. For me, besides the usual chin tuck, smaller bits, and lots of liquid to wash food down, I've also found it prudent to not try to eat and talk even in close proximity to each other anymore, never mind talk while eating, because that also is guaranteed to provoke choking; I just don't seem to have the coordination for it anymore. Oh yes, one other thing.... at least for a while, I goten found laughing something that would often provoke a nasty choking fit...it was like my coordination got out of my control. Chuckling usually didn't have the same result though, I guess it's a matter of how much control one is maintaining over things.... |
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Posted by: fancynancy ® 11/12/2002, 19:37:09 Author Profile Mail author |
It's funny you should mention processed potatoes. Almost every time I eat instant mashed potatoes, the first bite gets stuck in my throat, almost choking me! I have some water to wash it down, and boy does it hurt going down my throat. |
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Posted by: Micki ® 11/13/2002, 11:46:37 Author Profile Mail author |
All processed potatoes have sulfites in them. I too choke on instant mashed potatoes, but not ones I make myself from whole potatoes. I also choke on restaurant french fries, but not ones I make myself. One in 100 people are sensitive to sulfites. Most people with sulfite sensitivities are also sensitive to MSG and aspartame (nutrasweet). Do a search for foods that contain sulfites and MSG. It's a lot. For example, salad dressings (MSG), fresh grapes (sprayed with sulfites), many chips and dips, wine, beer, peanuts (read the label), dried fruit (sulfites), and on and on. Micki
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Posted by: Ida Neary ® 11/12/2002, 14:36:01 Author Profile Mail author |
Thought you should hear another side of this. The only time I had any trouble swallowing was when the Botox kicked in. Outside of that I have/had no other symptoms other than the spasms. Ida AD/SD 25 years Iowa |
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Posted by: Larry Blair ® 11/12/2002, 15:09:58 Author Profile Mail author |
Tammy, Well, my voice problems started with the swallowing thing. I was having problems with food getting stuck in the Esophagus every once and a while. I would have that regurgitation problem (lots of Phlegm). Thats when my Doctor started me on Prilosec for the acid reflux. Shortly after that I saw a Gastriologist that did a procedure that opened up my esophagus. I forget what that procedure is called? I have mentioned it here before. Anyway, I had that done twice within a few years. Oh yea, it's called Endoscopy. Just after those procedures I started having my voice problems. Little by little my voice got worse over the last 6 years. I remember asking him what he thought was the cause. He thought it might be two things, in combination. the acid reflux from the stomach down below and the sinus drainage from above. My vocal chords are getting it from both ends, so to speak?? You were asking about technics in speech therapy in another thread? I think what helped me the most in Speech Therapy was the yawning and humming exercises, along with the Diopragmatic breathing. The pathologist also recommended Steam inhalation and lots of water (80 ounces a day). The hard part is sustaining these technics in your daily life. Larry
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