So many who have a voice disorder describe themselves as shying away from the spotlight and public events. We think differently. There is no better person to represent someone with a voice disorder, than you. YOU ARE THE EXPERT! We encourage advocacy because it is healing, it is powerful and it helps others. 

Advocating for those with voice issues is the highest form of acceptance

There are so many ways that you can advocate and we included some of the more popular, but if you have an idea, let us know. All of the photos featured on this page are real people who moved beyond the sound of their voice to become engaged with this unique community.  And remember, you are not alone when you decide to volunteer. The NSDA provides support, so, think about how you would like to contribute! 

GET INVOLVED WITH A LOCAL FUND-RAISER

Whether you sponsor a local walk, BBQ, concert, 5K or other fun event, local fundraising is important to build awareness about SD and other vocal issues and to raise money to continue to support the mission of the NSDA Community. We have many resources to help you plan your next event.

ADVOCATE ON CAPITOL HILL

The NSDA is a proud member of the Dystonia Advocacy Network (DAN), a grassroots advocacy network that brings together dystonia-related patient groups to speak out with a single, powerful voice on legislative and public policy issues and funding that impact dystonia patients.​

USE YOUR SKILL TO RAISE AWARENESS AND FUND-RAISE

Do you have a special skill or talent that lends itself to a fundraising activity? You don't need a team of fifty to build awareness and generate revenue to help support research. Your special talents that would make a great fundraising project. We have many resources to help you plan your event.

HOST A FACEBOOK FUNDRAISER

Consider a Facebook fundraiser to celebrate you and your special voice on your birthday. It’s an easy, hands-off way to talk about the disorder and raise money for research in the process. We can show you how, just contact us!

JOIN/START A SUPPORT GROUP

The NSDA has more than 40 local support groups, but that isn’t enough. We would like to be able to offer a support group in every state and close to every major metropolitan area. This provides a place where someone with SD or other vocal disorder can come and find camaraderie, friendship and understanding.

BE A LOCAL AREA CONTACT

Local area contacts supplement the support group geography. As a Local Area Contact, you may simply have coffee with someone newly diagnosed, connect by email or phone. Local area contacts provide one-on-one support where there is no group or between meetings.

SHARE NSDA INFORMATION WITH YOUR DOCTOR

Doctors don’t always have time to read our newsletters or learn about the new research. So the next time you are on your way to visit your doctor, bring along some of the new information that that NSDA has available to leave behind for your doc to review. If you’re seeing your SLP or ENT, ask them if they are on the referral page of the NSDA website so that others looking for great healthcare can find them easily.

HOST A LOCAL EDUCATIONAL EVENT

You and your local support group can work with regional SLPs, universities and voice centers to sponsor a local educational event. These events are important because they build awareness about voice disorders, increase support group member advocacy, build relationships with providers and increase support group attendance. We can help you design a local educational event.

BE A SOCIAL MEDIA AMBASSADOR

Know all the in's and out's of Facebook or Instragram? Speak in #hashtags? We need your expertise as a social media ambassador. Share NSDA posts with Facebook groups, respond to comments and connect with others. Simply monitor social media sites to help the Community right from your own living room. You'll be spreading the word and helping others navigating this journey the process.

CELEBRATE WORLD VOICE DAY

April 16 is World Voice Day, a day dedicated to demonstrating the enormous importance of the voice. The NSDA encourages every member of our community to participate in some way. Raise funds, show your spirit, have a meeting or just make social media posts. This is an important awareness day for those living with SD and related voice conditions.

EDUCATE STUDENTS

Help us build the next generation of knowledgeable speech language pathologists by being a speaker at a local university. Speak about the challenges of living with a voice condition to benefit those who are yet to be diagnosed by shortening time between symptom onset and diagnosis. You're involvement teaches the SLP about the disorder early in their career.

ATTEND MEDICAL CONVENTIONS

The NSDA participates in a number of medical conventions throughout the year. This is an important component in building awareness and helps to grow the healthcare referral database that our NSDA community uses. We need volunteers to man the booth, speak to attendees about their voice disorder, and talk about NSDA initiatives.
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