Posted by: betty ®
01/30/2004, 21:01:08
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Thanks for bringing the program to our attention. i have a distant cousin who is female and my age. she has had MS for over twenty years and her voice now sounds like mine---AD/SD.
i have oftened wondered if there was a 'relationship' since we share the same gene 'pool' and with the tremors i have begun to experience hope i do not develop MS ------do people 50+ develop it.....just wondering?......................Betty
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Posted by: PJSmith ®
01/31/2004, 11:43:54
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Hi All! Regarding last nights show 20/20 and Richard Cohen's story----------I was blown away! When he started to speak I immediately said to my cats "he sounds like he has AD/SD." I hadn't heard or read that SD and MS are related or distant cousins but you have to wonder. AND it does make perfect sense that Richard's vocal cords would come into play with his MS. I wonder if research has looked into any possibility between the two disorders. Afterall, they are located in the same part of the brain. Anyone out there in "SD Land" heard or know of such research? Pat in Phoenix
AB/SD since 1996
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Posted by: pat rambo ®
01/31/2004, 14:58:13
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Hi,
I'm a retired Physiotherapist with AD SD currently in remission.
MS and SD are,indeed,both neurological conditions,but with very different etiology.
MS is caused by plaques destroying the myelin sheath that surrounds nerves in the spinal cord and brain,causing fragmented messages getting to the muscles,including the muscles of speech.
SD is caused by a problem with the Basal Ganglia,a part of the brain that produces chemicals such as dopamine,to control the contraction of muscles.
In other words, MS is a basically mechanical problem,where SD is a chemical problem, and I don't really see a connection.
I could ,of course, be wrong.
I hope this helps a bit.
Pat Rambo
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Posted by: kimberly ®
02/04/2004, 18:35:37
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Pat,Can I ask, what do you mean that your AD/SD is in remission? Did it go away or did you get Botox injections? Just curious. Kim AD/SD
Port St. Lucie, FL
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Posted by: Mary Bifaro ®
02/04/2004, 18:59:43
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I was very impressed by this media power couple. Meredith married Richard knowing about his MS. Richard's father has MS. Richard's book sounds great. What an inspiration they are!Mary Bifaro
Abductor SD since 1987
Charlotte, NC
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Posted by: Pat Odell ®
02/05/2004, 17:31:32
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I have not posted for a while because I kist my password, or so I thought, but this posting intrigued me! I posted last year when after several years of wondering what was wrong with my voice, I was diagnosed with SD. I had already come to that conclusion but after trying speech therapy I knew that I needed to look into the problem further. After my diagnosis, I posted and asked anyone if they had a diagnosis of SD AND multiple Sclerosis, which I was diagnosed with in 1988. I received no responses, probably because people were afraid that if they had SD that they might also have MS! Not so.I agree that many MS persons do sound like they have SD, but I was told over and over that my voice was due to the MS, not another disorder. I think most people with a diagnosis of MS do not look into the situation further because they take their doctor's word. I have had three Botox injections and am getting ready to go to Portland, Oregon and have another one in the next month. Pat Odell AD/SD
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Posted by: Lynne Martinez ®
02/05/2004, 18:47:52
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Hi Pat,I clearly remember your posts and history on the BB over the years. But, as "the other Pat" indicates above, SD and MS are both neurological disorders but originate differently. Possibly an indirect relationship (in the CNS/brain), but not direct? I forget --- do you see James Thomas, MD. in Portland? If so, that's great. He is a caring otolaryngologist who explores everything having to do with SD, on behalf of patients. I met him several years ago and he will be in Dallas in March. More info on this issue, re Richard Cohen's book and his recent interview on 20/20 and on "The View" Monday (2/2): For the first time since "The View" began 7 years ago, Meredith Viera's husband came on as a guest on Monday morning, after "20/20." He talked with the women of The View (without Meredith there). Again, his "AD-SD-sounding-voice" was evident. As on "20/20," there was no mention of Botox. On Monday, however, there wasn't even a mention of his voice, even though it was so obvious to any of us who knows what AD-SD sounds like. He's dealing with blindness also (result of MS), so his voice is not his primary concern. Some of us have written to Meredith though, to thank her for mentioning Botox treatment for vocal disorders last Friday. With Richard dealing with MS, cancer and blindness as well as a clear case of an SD-voice, I wouldn't expect them to feature SD as a part of these interviews. A thank-you for Meredith's statement seemed to be in order though. Anyone else who wants to do this can e-mail Meredith at: http://abc.go.com/daytime/theview/mail/vieira.html They are two people, as a couple and as a family (with their three children), who are dealing with alot - with chronic disorders and being in the public eye. They set an incredible example for all of us. If anyone writes to Meredith, I hope the main message from our SD community would be "thank you." Best wishes Pat. Good to see you back on the BB. --Lynne (AD-SD; Northern California)
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Posted by: pat rambo ®
02/06/2004, 13:09:50
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Hi Guys,
I guess neither Pat posts very often,but I do check the BB every day.
Pat O. ,I'm so sorry you have to battle both MS and SD.
Waiting so long for a diagnosis is awful,and any Neurologist worth their salt should recognize that there very well could be 2 separate conditions in one person.
Eveyone out there should not take no for an answer when you request further investigation.
The docs mean well,and are very smart,but also human.
Keep up the good fight.
Hi Lynne,
Nice to read your posts,as I always do.
Pat Rambo
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Posted by: Pat Odell ®
02/06/2004, 13:51:56
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Hi, Pat! Thanks for your reply. I count myself very fortunate in that neither diagnosis has stopped me from living a very productive and meaningful life. I have worked four years, full-time for an organization that is so wonderful to me. I am a valued employee and I love my job (and the paycheck)! They have stated to me that they will make whatever accomodations are necessary to make sure that I can continue to work for them. I have a very supportive husband and family who have adjusted well over the years to my limitations, which has made life much easier for me. I also have a very supportive church family that looks out for me! Life is good!Pat Odell AD/SD
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Posted by: pat rambo ®
02/07/2004, 13:45:05
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A good relationship with co-workers is a tremendous asset.
I also had full support at work.
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