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| “Mystery Diagnosis” episode on SD re-airs on Friday, February 4, 2011 |  | ||
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Posted by: nsda ® 02/02/2011, 19:39:29 |
Be sure to tune in on Friday, February 4, 2011, at 5:00 p.m. CST for a re-airing of the show "Mystery Diagnosis" that features spasmodic dysphonia. It will air on the Oprah Network "OWN." Please check you local cable listing for the channel and exact time in your area. If you are setting your DVR to record it, the episode is entitled "The Girl Who Stopped Growing." There are two stories featured in this hour-long episode and second one is on spasmodic dysphonia. We hope this will bring greater awareness to spasmodic dysphonia! |
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Posted by: ColleenNebr ® 02/08/2011, 12:02:15 |
I watched this program and it reminded me of me so much. I am sure all of us can relate.
It was really good. thanks for the heads up,
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| Re: Re: “Mystery Diagnosis” episode on SD re-airs on Friday, February 4, 2011 -- ColleenNebr | Top of thread | Archive | |
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Posted by: Mary Bifaro ® 02/08/2011, 13:37:00 |
Dear Colleen: This program had been aired previously on another network. It was good to see it again. I applaud the patient and her doctor for doing the program. Hopefully, someday, with everyone working to raise awareness about SD, the rare neurological voice disorder that we have in common will be less of a "mystery" to the lay and medical communities. Mary Bifaro
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Posted by: ColleenNebr ® 02/09/2011, 13:10:33 |
I found it interesting that it took me 8 yrs from 1990 to get a diagnosis. And still in 2007 she couldn't find a doctor either. They all told her it was psychological too. She went to many ear, nose and throat doctors. It surprizes me that there are so many ENT doctors that have no idea what SD is. Colleen AB/SD Nebr |
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| Re: Re: “Mystery Diagnosis” episode on SD re-airs on Friday, February 4, 2011 -- ColleenNebr | Top of thread | Archive | |
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Posted by: Mary Bifaro ® 02/09/2011, 15:08:21 |
Dear Colleen: Fortunately, there are many SD patients receiving a definitive SD diagnosis alot sooner than many have in the past. Because SD is so rare, I imagine that there are ENTs who have never had an SD patient. Alot depends on where you live and whether you have access to a large medical facility. In a small nonprofit like the NSDA, it will take all of us working together to continue to carry out our important mission work. Mary Bifaro
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