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| Peripheral Neuropathy of Unknown Origin |  | ||
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Posted by: hpuckett ® 06/08/2009, 13:16:00 |
Very recently I am experiencing SD on top of my other neurologic diagnosis of Peripheral Neuropathy (PN) (Dx 2001). Does anyone out there (SD folks) also enjoy PN? My voice is all but impossible to control, and seems to be progressing very quickly. I have not see a Speech Mx yet, but will likely get a referral when I see my Neuro next month. I did have a bout with SD many years ago, curiously, and that was treated with surgical shortening of the LTVC. Then 6 months of speech therapy. The problem came out of the blue in 1982. I sure would appreciate any comments, shared symptoms, etc. Feeling pretty trapped inside my brain these days, as I have always been very vocal and outgoing. Now I dread any phonecall, and most conversations in fact. Thanx. //harvey |
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Posted by: Catherine1011 ® 06/27/2009, 17:50:13 |
Hi Harvey, I also have PN but my neurologist tells me it's unrelated to my SD. I say; who knows for sure. They both hit around the same time about 6-7 years ago. I have the PN in my feet and lower legs, lots of burning pain, tingling, shooting stabbing pains in my feet. It's not known what the cause is even after lots of testing. |
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Posted by: hpuckett ® 07/01/2009, 05:41:55 |
Hey Catherine, Thanx for the feedback, was beginning to think (always a bad idea) that I was alone in this regard. I agree with what you say "who knows" and it is just too coincidental for me to agree that there is no causal connection. With me, the SD hit first at age 37 (or so), and then hit again, coming on slowly at first, last year. I am 63 and of course the doctors just want to say "age related". Don't worry, be happy; and I don't and I am ... but the situation is so frustrating with no inkling why either the PN (2001 diagnosed) or the SD. What do you use for the PN? I was up on high dose of Gabapentin (3600 MG daily) and moderate dose of Topamax (75 MG daily). I have successfully eliminated the TOPAMAX (made me very drowsy, and increased my balance problems), and reduced the Gabapentin (1500 MG daily). I have the same symptoms you cite, but the Gabapentin takes the edge off them. If you'd like to discuss more offlline, my personal email is harvey.puckett@gmail.com. Thanx and take care. |
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