Posted by: David Barton ®
08/21/2005, 16:56:21
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Hi WilmaThis used to happen to me in the early days of Botox injections. Unfortunately I think the advice you have been given is probably accurate. I found I was able to get longer lasting benefit from Botox injections for my AD/SD by increasing the dose but having the shot in one vocal cord only - this is called a 'unilateral' injection. If you are interested you could search the archives for words like 'unilateral' and 'breathiness'. There is a thread about this from about 3 months ago. I'll put a link to it at the bottom of this post. Good luck David Barton
Related link: http://www.dysphonia-bb.org/forums/sd/posts/24344.html
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Posted by: Renee ®
08/21/2005, 17:00:01
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Usually when you have this kind of reaction, the doctor gave you too much botox. This extreme whispering stage will die down and you'll eventually get a more normal voice. Next time I would recommend decreasing the dosage of botox...Renee ADSD/ Austin, TEXAS
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Posted by: Valerie Handelsman ®
08/22/2005, 12:55:25
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Yes, I had similar problems. Botox really didn't help me. I had breathing problems also.
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Posted by: Pat Smith ®
08/22/2005, 13:03:00
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That happened to me this past spring. I had no voice for three months and lost my job because of it. Even the doctor confessed to "overdosing" me. Not seeing that doc anymore.Pat
Phoenix
AB/SD
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Posted by: WFZ ®
08/22/2005, 14:20:23
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Hi Pat,
Thanks for your info. Sorry you had to lose your job. I teach piano to adults and they are very understanding. I thought maybe being 75 yrs young would affect the fact that I had lost my voice with the extra 1/2 unit of Botox. But I have since learned that age is not a factor. My Dr. is suppose to be tops in the neurological field--Parkensons especially. But if this happens again I might try a Dr. Berke from UCLA. Another specialist that also does SLADE surgery.
take care,
WFZ/Wilma
Lone Pine, CA
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Posted by: Jeanette ®
08/23/2005, 18:58:47
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I have been having Botox since 2001 about every 4 months. The last one was early June and I had the breathy/whispery voice for five weeks, then a bit of volume for two more weeks, and now I have 95% good voice. Hope it will last for 10 - 12 weeks as this is the best voice I have had for 12 months. Stay positive and you will have the same result.
Jeanette ADSD New Zealand
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Posted by: mdubovick ®
08/23/2005, 20:38:26
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The breathy voice means the Botox shot should work! Once the breathiness wears off, you should find it easier to speak.Diane Rehm, a 'celebrity broadcaster' for National Public Radio in Washington, DC has SD. (she has interviewed Presidents, Secretary of State, etc.) She wrote a book and in it said, when she woke up the morning after having had a Botox shot the day before, she was thrilled to have the breathy voice- - for that was proof the Botox shot was going to work. As for the answer to your question - sorry, the extent of breathiness varies by each individual. It could be anywhere from 1 week to 8 weeks. As was mentioned, getting the shot in one cord (unilateral) should minimize breathiness. So will lowering the dosage. THE REAL ANSWER FOR YOU CAN ONLY BE DETERMINED BY TRIAL AND ERROR - YOUR OWN EXPERIENCES. Wish there was a more precise answer.....
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Posted by: WFZ ®
08/24/2005, 19:11:10
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Hi,
And thanks for the info. I really don't have a breathy voice---I just don't have any voice. I can get out a few words but then it goes into a whisper. I'll be so happy if I can just get back my pre-Botox croaking, strangling voice! My Dr. gives me 2units unilateral . But this time he gave me a half unit more in hopes that it will last longer than two months.
Didn't work---but I am hopeful. You all have been very encouraging. I was afraid my voice was gone for good!! I know that there isn't a sure answer for this SD.
Thanks again,
take care,
Wilma
Lone Pine CA
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Posted by: Paula B. ®
08/25/2005, 01:23:30
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Hi Wilma,We all must go up and down when it deals with Botox. I also wished for my old croaking voice while dealing with the side effects of Botox, but shortly after being upset over it, my voice came back. I love the way I sound and the ability to talk and breathe freely. There may not be a cure, or a solution for breathiness yet, but I sure hope that someday in our lifetime someone will find it. :) Don't give up before the final results. It may seem bad now, but I'm sure things will get better. Good luck, Hope your good voice comes soon, Paula (Chicago,IL)
ADSD since February 2005
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Posted by: Patricia Green ®
08/25/2005, 12:05:32
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Hi,
Just wanted to add my experience with the whisper voice. I finally had a successful botox injection treatment at Mayo in Jax. in Dec. 2004(after an EXCRUCIATING one at an independent ENT who went down through the nose canal and into the larynx).....anyway, the speech path. there had told me that I would probably have a very quiet voice after a day or two, and then go to a whisper for a week or two. Mine lasted a little more than three weeks, then started getting stronger and stronger, and then I had a nearly perfect voice for about 4 months. I just had another botox at the Shands here, and I waited and prayed for the whisper to start, but sadly it did not, and my "OLD" voice is still here. So apparantly the botox did not go into the vocal chords, as he used the same amount (2.5) that the Mayo doctor had used. I had no idea back in 2003 when I finally decided to try the botox inj. that it was such an iffy treatment.Well, I hope your get a new sweet voice after the "whisper period". It is soooooooo worth it, when it works! God bless,
Pat
Florida
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