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Posted by: Melissa Smith ® 09/05/2002, 10:11:24 Author Profile Mail author |
Hello Im new at this. I have really enjoyed reading some of the bulletins. I have SD myself. Im fixing to go for my fourth injection. I already dread the breathiness, it only lasts for a few weeks but seems like an eternity. I can not wait till the day the find a cure for SD. Anyway, Im hoping to meet some new friends to share my experiences with. Looking forward to your responses. |
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Posted by: Linda S. Adamson ® 09/06/2002, 09:24:19 Author Profile Mail author |
Hi, Melissa, welcome! I know how much this resource has meant to me in adjusting to life with SD. Where are you, geographically? Are you plugged into a support group in your area? That has also made a big difference to me. All my best with your continued treatments! Linda AB, Annapolis, MD |
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Posted by: Melissa Smith ® 09/09/2002, 10:28:14 Author Profile Mail author |
Hi Linda!! Thanks for the welcome! I do not attend in support groups yet. I plan on doing so here soon. Im so thankful I have found this site. Im learning a great deal about SD, and some of the surgerys that are out there to help with it. Thanks again for the welcome. I look forward to talking with you again. Missy |
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Posted by: Todd ® 09/11/2002, 08:57:38 Author Profile Mail author |
Hello Melissa - just had my first shot a month ago. just in the last week my voice has become better than it has been in over a year and a half since the SD really set in on me. I too found this a very valuable resource, as I have also not been to any support groups (they are all a long ways away) - this is has been my primary resource for getting info on this. I don't post much, but I read here often, welcome! |
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Posted by: Linda S. Adamson ® 09/11/2002, 14:20:18 Author Profile Mail author |
For Melissa, Todd, and other new folks, I'll just add a note to encourage you to attend one of the events (the Nov. dystonia conference in Miami and/or the specifically-SD patient symposium in DC next March) that can give us the real up-to-date newest on research and treatment, as well as the goldmine of meeting other folks who really do know what walking in our mocassins is like! The cure/fix will come someday, I am absolutely certain. It may initially show up specific to one of the other branches of the dystonia family, but I'm betting it will be relevant to all of us, in some modified form, eventually. May we all live to see it. Linda AB, Annapolis MD |
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