The NSDA was established out of a desire to help people cope with those challenging voice disorders.  This news section is committed to providing research updates, resources and stories to help our Community. 

In Memoriam | Jimmie Rodgers

Singer Jimmie Rodgers passed away. He served as an NSDA Honorary Director and was the Keynote Speaker at 2005 NSDA Symposium. Jimmie had a string of hits in the 50s and 60s including, Honeycomb and Kisses Sweeter than Wine, until spasmodic dysphonia took his singing voice away.

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Bruce A. Menk Appointed to the NSDA Board of Directors

Bruce Menk is no stranger to the NSDA. He served on our Board from 1993 to 1999 and was President for two of those years. He has served as pro bono Legal Counsel since he stepped down from the Board. With his recent retirement, he will no longer serve in that role, and will rejoin the NSDA Board.

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New Legal Counsel | Susan H. Boyles

We are excited to welcome Susan H. Boyles as the new pro bono Legal Counsel for the NSDA. Susan is a Partner at the international law firm of Kilpatrick Townsend & Stockton LLP. This contribution to the NSDA is very personal to her, as she has had spasmodic dysphonia since 1996.

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Linda Thompson Kenis

Linda Thompson Kenis’ voice is a British national treasure. She and her first husband, Richard Thompson, are folk-rock icons who launched their careers in the early 1970s. Kenis achieved international fame – as part of the duo, as a solo performer, and as a songwriter. Unfortunately, Linda developed spasmodic dysphonia at a young age.

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2020 Issue of “Our Voice”

The theme of this issue is Turning Points. Inspired by the twists and turns of this year, 2020 has taught us collectively to be more flexible and accepting of change. In this 40-page issue, you will also find research updates, NSDA news, helpful tools and a review of support and awareness programs.

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A Voice of Many Colors

The NSDA is excited to announce that we are launching a virtual art sale titled, A Voice of Many Colors, on the NSDA website. NSDA Development Director Susan Beck has donated fine art prints from her father Paul J. Long’s lifelong creative legacy.

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In Memoriam | Johnny Bush

Country Singer Johnny Bush passed away on October 16, 2020. He served as an Honorary Director for the National Spasmodic Dysphonia Association in recognition of his efforts to raise awareness about spasmodic dysphonia. He was honored by the NSDA in 2014. Johnny didn’t let his struggles with spasmodic dysphonia stop him from sharing his many gifts and was still playing out regularly at age 85

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Dennis Kaszeta joins NSDA Board

We are excited to welcome Dennis Kaszeta to the NSDA Board of Directors. He helped to rejuvenate the Detroit Area Support Group and the group was recently awarded the NSDA’s 2020 Midge Kovacs Awareness Award.

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2020 Walk for Talk

Join us for the first-ever virtual Walk for Talk to benefit the NSDA. This 5K and Fun Walk will be held from October 22 to 25, 2020. You can participate no matter where you live!

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2020 Dot Sowerby Pioneer Award

Carol Doles was honored in 2020 for her great contributions to the NSDA including her work as Eastern Region & Canada Representative, Support Group Leader, member of the Support Leadership Committee and an Administrator of the NSDA Support Leadership Facebook Group.

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2020 Midge Kovacs Award

For their work in 2019 and several years prior to that, the award this year is given to Dennis Kaszeta and the Greater Detroit NSDA Support Group. Truly, Dennis follows in the footsteps of the late pioneering SD advocate, Midge Kovacs.

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NSDA Awareness Face Masks

Having a voice disorder can be challenging, but having to wear a mask can make it even harder with the additional effort to project your voice. With these awareness masks, you can let people know that you have a voice disorder without having to say a word.

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2020 NSDA Virtual Symposium

The 2020 NSDA Virtual Symposium will take place on Saturday, May 2, 2020, with a combination of live and pre-recorded presentations. This conference was originally scheduled to take place in the Detroit area, but it was canceled due to the situation with the COVID19 pandemic.

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World Voice Day

World Voice Day is celebrated every April 16th with the main goal of increasing public awareness throughout the world of the importance of the voice and impact of voice problems. The 2020 theme for World Voice Day is “FOCUS ON YOUR VOICE.”

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NSDA Virtual Support Sessions

During this time of social distancing, the National Spasmodic Dysphonia Association is hosting virtual support sessions to share experiences about living with spasmodic dysphonia and related voice conditions.

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NSDA Webinars

The NSDA is launching a new series of webinars in response to the COVID-19 situation with different guest speakers. Join us on Tuesday afternoons at 2 pm CT and on Thursdays at 5 pm CT.

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COVID-19 Information

We know these are uncertain times with the pandemic of COVID-19 that is impacting all aspects of our daily lives. We put together some current information along with some resources that might be helpful.

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