The NSDA was established out of a desire to help people cope with those challenging voice disorders. This news section is committed to providing research updates, resources and stories to help our Community.
As part of a project of the Dystonia Coalition, researchers are currently collecting data from patients with spasmodic dysphonia (also known as laryngeal dystonia).
Read more about the ten recipients of the NSDA Research Travel Award for the 2021 Fall Voice Conference.
Managing your career has never been harder for most people. But it’s not impossible.
Singer Jimmie Rodgers passed away. He served as an NSDA Honorary Director and was the Keynote Speaker at 2005 NSDA Symposium. Jimmie had a string of hits in the 50s and 60s including, Honeycomb and Kisses Sweeter than Wine, until spasmodic dysphonia took his singing voice away.
This past year has been anything but normal. In response, the NSDA adapted quickly to provide continued service and support to our community’s needs. NSDA President Charlie Reavis reflects on the many silver linings discovered during 2020.
New research out of the University of Pennsylvania explores the auditory feedback control of vocal pitch in spasmodic dysphonia.
Bruce Menk is no stranger to the NSDA. He served on our Board from 1993 to 1999 and was President for two of those years. He has served as pro bono Legal Counsel since he stepped down from the Board. With his recent retirement, he will no longer serve in that role, and will rejoin the NSDA Board.
We are excited to welcome Susan H. Boyles as the new pro bono Legal Counsel for the NSDA. Susan is a Partner at the international law firm of Kilpatrick Townsend & Stockton LLP. This contribution to the NSDA is very personal to her, as she has had spasmodic dysphonia since 1996.
Linda Thompson Kenis’ voice is a British national treasure. She and her first husband, Richard Thompson, are folk-rock icons who launched their careers in the early 1970s. Kenis achieved international fame – as part of the duo, as a solo performer, and as a songwriter. Unfortunately, Linda developed spasmodic dysphonia at a young age.
The theme of this issue is Turning Points. Inspired by the twists and turns of this year, 2020 has taught us collectively to be more flexible and accepting of change. In this 40-page issue, you will also find research updates, NSDA news, helpful tools and a review of support and awareness programs.
Country Singer Johnny Bush passed away on October 16, 2020. He served as an Honorary Director for the National Spasmodic Dysphonia Association in recognition of his efforts to raise awareness about spasmodic dysphonia. He was honored by the NSDA in 2014. Johnny didn’t let his struggles with spasmodic dysphonia stop him from sharing his many gifts and was still playing out regularly at age 85
Vibro-tactile Stimulation as a Feasible Symptomatic Treatment for the Voice Disorder Spasmodic Dysphonia
Researcher Arash Mahnan is the recipient of 2020 the NSDA Research Award in partnership with The Voice Foundation.
Carol Doles was honored in 2020 for her great contributions to the NSDA including her work as Eastern Region & Canada Representative, Support Group Leader, member of the Support Leadership Committee and an Administrator of the NSDA Support Leadership Facebook Group.