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Books
|  | | Easier Done than Said...Living with a Broken Voice Author: Karen Feeley Price: $15.00 Written by those who suffer from SD, and professionals who work with SD patients, it is a compendium of shared experiences from within the SD community. For those who have been coping with SD for years, we hope this book will provide you with some new ideas to address current issues you might be facing. For those who are recently diagnosed or who are still seeking answers to this strange ailment, we hope this book will serve as a useful reference guide as you begin your journey through life with SD. For friends, family members, or co-workers of those with SD, we hope this book will help you to better understand the plight of people dealing with SD.
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|  | | Easier Done than Said...Living with a Broken Voice - International Shipping Author: Karen Adler Feeley Price: $22.00 Written by those who suffer from SD, and professionals who work with SD patients, it is a compendium of shared experiences from within the SD community. For those who have been coping with SD for years, we hope this book will provide you with some new ideas to address current issues you might be facing. For those who are recently diagnosed or who are still seeking answers to this strange ailment, we hope this book will serve as a useful reference guide as you begin your journey through life with SD. For friends, family members, or co-workers of those with SD, we hope this book will help you to better understand the plight of people dealing with SD.
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|  | | Speechless: Living with Spasmodic Dysphonia Author: Dot Sowerby Price: $12.00 "Speechless: Living with Spasmodic Dysphonia?" is the biography of NSDA Board Member Dot Sowerby's experience with SD as told to Betty Schonauer. Also featured in the publication are I Climb Over My Voice by Jean Newcomer and An SD's Experience with Depression by French O'Shields, D.Min. as well as articles by Michael Rolnick, Ph.D. of William Beaumont Hospital in Michigan and Michael Rontal, M.D. of Associates in Otolaryngology also in Michigan.
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|  | | Prince Bear and Pauper Bear Author: Emily Lim Price: $16.00 This hard cover, beautifully illustrated book is about Pauper Bear who is a sad little teddy bear who longs to be loved. Prince Bear is a proud bear who loves himself. When their paths take different turns, the two bears discover that things do not happen as they expect. In the process, the two teddy bears come to experience love and friendship with new perspectives. This picture book is written for children from five years old and up, and also for younger children whose parents and guardians are reading with them. It has many themes which can appeal at several levels - love and charity towards others, having a heart to share with siblings & friends, going beyond appearances and also about second chances in life. This story was inspired by author Emily Lim's own personal struggles of coping with Spasmodic Dysphonia for the past nine years.
Please note: A limited quantity of these books were donated to the NSDA by the author Emily Lim and the proceeds from the sale of this book supports the organization.
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| | | Insurance Assistance Approval and the Appeal Process in the Treatment of SD Price: $2.50 Navigating the insurance approval and appeal process can be daunting, but with the right tools it is possible to obtain coverage of treatment for Spasmodic Dysphonia. The NSDA has prepared this booklet to assist with insurance approvals and appeals for the treatment of Spasmodic Dysphonia with botulinum toxin type A (Botox®).Guidelines for Insurance Approval and the Appeal Process in the Treatment of Spasmodic Dysphonia with botulinum toxin injections.
Please note: You may download the PDF version of this booklet for free or order it from $2.50 Download the Adobe Postcript File
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Brochures
| | | Botulinum Toxin Tracking Chart Price: n/c For download only
If you are received botulinum toxin injections, you may want to consider tracking your response to the treatment. This chart can help map out the effectiveness and length of the treatment. This can be especially useful when are just starting treatment or if you are changing the dosage. By using a new sheet for every injection, you develop a history of your treatment response and can discuss with your healthcare provider the results from the injection. Download the Adobe Postcript File
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| | | Employment and SD Price: n/c For download only
This 2-page information sheet gives an overview of some options when working with SD including a list of jobs that have lower voice demands. Download the Adobe Postcript File
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| | | Job Interviews and SD Price: n/c For download only
This 2-page information sheet gives an overview of some options when interviewing for a job and having SD.
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| | | National Spasmodic Dysphonia Association Brochure Price: n/c This brochures provides an overview of the NSDA, its mission, and how it strives to enhance the spasmodic dysphonia community in the areas of research, awareness, advocacy, education, and support.
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| | | NSDA Information Sheet Price: n/c For download only
This one-page sheet provides an overview of the services of the National Spasmodic Dysphonia Association. Download the Adobe Postcript File
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| | | Resources for Personal Voice Amplifiers Price: n/c For download only
This one-page information sheet provides resources for personal voice amplifiers to help project a soft voice that can by caused by spasmodic dysphonia. Download the Adobe Postcript File
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| | | Telecommunication Options for People with SD Price: n/c For download only
This 4-page information sheet provides an overview of telecommunication options for people with SD including operator assisted and non-operator assisted resources Download the Adobe Postcript File
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| | | Understanding Spasmodic Dysphonia Price: n/c This brochure provides an overview of spasmodic dysphonia including the forms of SD, diagnoses, causes, treatments, and its impact on a person.
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| | | Spasmodic Dysphonia General Kit Price: n/c The introduction packet includes information on the symptoms of and treatment for spasmodic dysphonia along with a copy of the NSDA Newsletter.
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| | | Three-Fold Wallet Card on Spasmodic Dysphonia Price: $0.10 This handy business-size card explains what is spasmodic dysphonia. [Can be purchased in bulk quantities.]
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| | | Treatment Options for SD: Surgical Procedures Price: $0.20 This brochure outlines the various surgical procedures for the treatment of spasmodic dysphonia including thyroplasty, denervation procedures, and other procedures.
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| | | Treatment Options SD: Botulinum Toxin Injections Price: $0.20 This brochure provides an overview of the expectations of botulinum toxin injections for both ADductor and ABductor spasmodic dysphonia.
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Videos/Tapes/CD
|  | | Understanding Spasmodic Dysphonia DVD Price: $15.00 The “Understanding Spasmodic Dysphonia” DVD contains over an hour of interviews including an overview of Spasmodic Dysphonia; discussions with healthcare experts about diagnosis, treatment, and research; patient interviews including NPR journalist Diane Rehm and singer Jimmie Rodgers, along with voice samples of the disorder. The DVD is appropriate for persons affected with Spasmodic Dysphonia, family members and friends, healthcare professionals and others who are interested in Spasmodic Dysphonia and its impact on people's lives.
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|  | | Understanding Spasmodic Dysphonia DVD - PAL Version Price: $18.00 Please note: This is the PAL Version of the DVD which will play on DVD players outside of North America. The “Understanding Spasmodic Dysphonia” DVD contains over an hour of interviews including an overview of Spasmodic Dysphonia; discussions with healthcare experts about diagnosis, treatment, and research; patient interviews including NPR journalist Diane Rehm and singer Jimmie Rodgers, along with voice samples of the disorder. The DVD is appropriate for persons affected with Spasmodic Dysphonia, family members and friends, healthcare professionals and others who are interested in Spasmodic Dysphonia and its impact on people's lives.
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|  | | 2008 Symposium DVD Price: $25.00 Two-disk DVD set of the 2008 NSDA Symposium in Salt Lake City, Utah. Speakers include Drs. Perla Thulin, Mark LeDoux, Marshall Smith, Nelson Roy, Mark Courey, Carolyn Baylor, Tanya Eadie, Kristine Tanner, Christy Ludlow, along with Karen Adler Feeley, Chip Hanauer, and Larry Kolasa.
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|  | | 2008 NSDA Symposium DVDs - PAL Version Price: $30.00 Please note: This is the PAL Version of the DVD which will play on DVD players outside of North America. Two-disk DVD set of the 2008 NSDA Symposium in Salt Lake City, Utah. Speakers include Drs. Perla Thulin, Mark LeDoux, Marshall Smith, Nelson Roy, Mark Courey, Carolyn Baylor, Tanya Eadie, Kristine Tanner, Christy Ludlow, along with Karen Adler Feeley, Chip Hanauer, and Larry Kolasa.
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Newsletters
| | | NSDA Newsletter Price: $40.00 Produced by the National Spasmodic Dysphonia Association, the NSDA Newsletter gives updates of scientific research and current happenings. We ask for a voluntary membership of $40 to join the NSDA. You will receive a subscription to the NSDA Newsletter and become part of a network of SD patients and friends.
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Support Materials
| | | Support Group Tip Sheets Price: n/c For download only
This sheet provides Support Group Leaders with tips make support group meetings more successful. Download the Adobe Postcript File
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